Mary B., Charlottesville, VA
My daughter was 25 years old when she was diagnosed with anti-NMDA receptor encephalitis. She had worked as a server with no insurance through her restaurant before her illness put her in a coma in the neurology intensive care unit for a week, followed by 5 weeks in the hospital. Her follow up treatments included ten rounds of IV infusions of healthy antibodies. Without insurance, each of those infusions would have cost $8,000 each, and that’s assuming she would have even been treated.
The ‘retail’ price of her treatment over the past year, including expensive anti seizure and auto immune prescription therapies, is approaching $500,000. Because she was able to stay on my insurance, she was covered and we were able to spend the last year focused on her recovery instead of impending financial doom.